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Oops! - Proclivities - Oct 23, 2019 - 8:19am
 
Baseball, anyone? - Red_Dragon - Oct 23, 2019 - 8:04am
 
Trump - Red_Dragon - Oct 23, 2019 - 7:45am
 
PANTS ON FIRE! - Red_Dragon - Oct 23, 2019 - 6:22am
 
Radio Paradise Comments - Coaxial - Oct 23, 2019 - 6:15am
 
Today in History - Red_Dragon - Oct 23, 2019 - 6:09am
 
Radio Paradise NFL Pick'em Group - olivertwist - Oct 23, 2019 - 3:26am
 
Country Up The Bumpkin - sirdroseph - Oct 23, 2019 - 2:24am
 
Strips, cartoons, illustrations - R_P - Oct 22, 2019 - 10:14pm
 
What The Hell Buddy? - oldviolin - Oct 22, 2019 - 6:55pm
 
Dialing 1-800-Manbird - oldviolin - Oct 22, 2019 - 6:31pm
 
OUR CATS!! - westslope - Oct 22, 2019 - 6:22pm
 
Climate Change - R_P - Oct 22, 2019 - 6:08pm
 
Positive Thoughts and Prayer Requests - triskele - Oct 22, 2019 - 4:45pm
 
Things You Thought Today - triskele - Oct 22, 2019 - 4:44pm
 
Canada - haresfur - Oct 22, 2019 - 3:46pm
 
electric duets and Rock Wiz - haresfur - Oct 22, 2019 - 3:38pm
 
punk? hip-hop? metal? noise? garage? - rhahl - Oct 22, 2019 - 3:32pm
 
What are you listening to now? - Ohmsen - Oct 22, 2019 - 3:27pm
 
Speaking of Logos... - Ohmsen - Oct 22, 2019 - 3:24pm
 
Economix - miamizsun - Oct 22, 2019 - 3:03pm
 
Dying for Halloween Music to start! - Ohmsen - Oct 22, 2019 - 2:51pm
 
Beta Player on Android TV. - puntloos - Oct 22, 2019 - 2:12pm
 
Questions. - SeriousLee - Oct 22, 2019 - 1:04pm
 
Lyrics That Remind You of Someone - SeriousLee - Oct 22, 2019 - 12:56pm
 
Interesting or Weird Cover Versions - NoEnzLefttoSplit - Oct 22, 2019 - 12:37pm
 
Health Care - R_P - Oct 22, 2019 - 12:01pm
 
• • • BRING OUT YOUR DEAD • • •  - oldviolin - Oct 22, 2019 - 9:58am
 
• • • The Once-a-Day • • •  - oldviolin - Oct 22, 2019 - 9:45am
 
Cryptic Posts - Leave Them Guessing - oldviolin - Oct 22, 2019 - 8:57am
 
Bad News / Good News - ScottFromWyoming - Oct 22, 2019 - 8:44am
 
Live Music - sirdroseph - Oct 22, 2019 - 6:46am
 
Suggestion: Americana Mix - sirdroseph - Oct 22, 2019 - 2:54am
 
Venezuela - R_P - Oct 22, 2019 - 1:19am
 
Bob Dylan - oldviolin - Oct 21, 2019 - 10:19pm
 
Lyrics that strike a chord today... - oldviolin - Oct 21, 2019 - 10:00pm
 
YouTube: Music-Videos - oldviolin - Oct 21, 2019 - 9:52pm
 
Photography Forum - Your Own Photos - KurtfromLaQuinta - Oct 21, 2019 - 7:58pm
 
Trump Lies - R_P - Oct 21, 2019 - 4:12pm
 
Celebrity Face Recognition - Ohmsen - Oct 21, 2019 - 4:01pm
 
Syria - Ohmsen - Oct 21, 2019 - 2:36pm
 
If Wishes Were Horses - katzendogs - Oct 21, 2019 - 1:06pm
 
Acoustic Guitar - R_P - Oct 21, 2019 - 12:55pm
 
Regarding dogs - miamizsun - Oct 21, 2019 - 10:58am
 
Bug Reports & Feature Requests - lightfoot - Oct 21, 2019 - 10:17am
 
Nice set Bill.... - dischuckin - Oct 21, 2019 - 10:14am
 
Puzzle it - oldviolin - Oct 21, 2019 - 9:51am
 
Mixtape Culture Club - Lazy8 - Oct 21, 2019 - 9:35am
 
GHOST of HALLOWEEN, Past, Present, & Future - Proclivities - Oct 21, 2019 - 9:01am
 
RP Android app causing SystemUI to crash loop - BillG - Oct 21, 2019 - 8:53am
 
Derplahoma Questions and Points of Interest - ScottFromWyoming - Oct 21, 2019 - 8:30am
 
Democratic Party - Ohmsen - Oct 21, 2019 - 7:47am
 
kurtster's quiet vinyl - Ohmsen - Oct 21, 2019 - 7:32am
 
Music Videos - Proclivities - Oct 21, 2019 - 7:30am
 
The Global War on Terror - kurtster - Oct 20, 2019 - 6:45pm
 
Name My Band - oldviolin - Oct 20, 2019 - 11:23am
 
The Dragons' Roost - triskele - Oct 20, 2019 - 6:43am
 
If you are allowed to pack ten things to take to the Afte... - rashad - Oct 19, 2019 - 10:27pm
 
President Elizabeth Warren - haresfur - Oct 19, 2019 - 6:28pm
 
Tech & Science - Ohmsen - Oct 19, 2019 - 4:05pm
 
Evolution! - R_P - Oct 19, 2019 - 3:40pm
 
Fake News*  ?  ! - Ohmsen - Oct 19, 2019 - 2:50pm
 
Gotta Get Your Drink On - Ohmsen - Oct 19, 2019 - 2:33pm
 
Classical Music - R_P - Oct 19, 2019 - 2:19pm
 
Counting with Pictures - Ohmsen - Oct 19, 2019 - 10:51am
 
Anti-War - Ohmsen - Oct 19, 2019 - 10:43am
 
• • • What Makes You Happy? • • •  - Ohmsen - Oct 19, 2019 - 10:29am
 
Pernicious Pious Proclivities Particularized Prodigiously - R_P - Oct 19, 2019 - 12:03am
 
New Music - R_P - Oct 18, 2019 - 11:45am
 
Room 3a - Proclivities - Oct 18, 2019 - 11:19am
 
260,000 Posts in one thread? - SeriousLee - Oct 18, 2019 - 9:08am
 
Freedom of speech? - miamizsun - Oct 18, 2019 - 4:14am
 
The RANT Forum - miamizsun - Oct 18, 2019 - 4:02am
 
Would you drive this car for dating with ur girl? - SeriousLee - Oct 18, 2019 - 1:26am
 
Words that should be put on the substitutes bench for a year - SeriousLee - Oct 18, 2019 - 1:23am
 
Index » Radio Paradise/General » General Discussion » Other Medical Stuff Page: 1, 2, 3 ... 45, 46, 47  Next
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Antigone

Antigone Avatar

Location: A house, in a Virginian Valley
Gender: Female


Posted: Jun 17, 2019 - 2:56am

 ScottFromWyoming wrote:
They have a new, much more effective shingles vaccine out now. Our church decided to pay for anyone who thinks they want it (in the church or not) out at the public health annex. They ran out, but put me on a waiting list and a few days ago, they called and said they had some. I went in Friday morning before going out to sightsee with haresfur! While I was there waiting, Justine had me ask if it was recommended for her because she'd had a mild case a while ago etc. and they said yes and they looked and had enough doses to give her one too. So we both got a shot of it. When I was in with the nurse, she says, "So! Got any big plans this weekend?" Ooh, chatty. Okay. "Not really, just work stuff." She says "well you might want to call in sick because this will leave you feeling puny for a day or two."

Puny. Isn't that, like, queasy? A little under the weather, lethargic, yeah? No, sorry, we made it thru the day being active, but about 8 or 9 hours after getting the shots, started to ache and were running a fever. By midnight, we were both complaining that it felt like we'd been hit by a car. Holy crap it hurt. I took a double dose of naprosyn about 2 a.m. and finally got to sleep for a while but I had to get up and go to the zipline and greet customers. 

So, anyway. Have to get a booster shot in 3 months. I'll plan ahead next time, boy.

 
Yep. Three months ago (today!) I got the first one at my pharmacy. My pharmacist didn’t even recommend I take any pain meds. The next day I called in to work, and slept for 12 hours. AND took pain meds! I also need to plan ahead this time.
ScottFromWyoming

ScottFromWyoming Avatar

Location: Powell
Gender: Male


Posted: Jun 16, 2019 - 11:05pm

They have a new, much more effective shingles vaccine out now. Our church decided to pay for anyone who thinks they want it (in the church or not) out at the public health annex. They ran out, but put me on a waiting list and a few days ago, they called and said they had some. I went in Friday morning before going out to sightsee with haresfur! While I was there waiting, Justine had me ask if it was recommended for her because she'd had a mild case a while ago etc. and they said yes and they looked and had enough doses to give her one too. So we both got a shot of it. When I was in with the nurse, she says, "So! Got any big plans this weekend?" Ooh, chatty. Okay. "Not really, just work stuff." She says "well you might want to call in sick because this will leave you feeling puny for a day or two."

Puny. Isn't that, like, queasy? A little under the weather, lethargic, yeah? No, sorry, we made it thru the day being active, but about 8 or 9 hours after getting the shots, started to ache and were running a fever. By midnight, we were both complaining that it felt like we'd been hit by a car. Holy crap it hurt. I took a double dose of naprosyn about 2 a.m. and finally got to sleep for a while but I had to get up and go to the zipline and greet customers. 

So, anyway. Have to get a booster shot in 3 months. I'll plan ahead next time, boy.
miamizsun

miamizsun Avatar

Location: (3261.3 Miles SE of RP)
Gender: Male


Posted: Feb 7, 2019 - 6:52am

 kurtster wrote:
I've taken a lot of flack about the eye being a part of the brain.  Maybe this will be helpful in further understanding.

Neuro-ophthalmology

Optic nerve

The optic nerve is the second of twelve paired cranial nerves and is technically part of the central nervous system
 

i'm cool with the eye being a subdivision of brainville

just don't ask me to go to war over it
kurtster

kurtster Avatar

Location: drifting
Gender: Male


Posted: Feb 6, 2019 - 8:18pm

I've taken a lot of flack about the eye being a part of the brain.  Maybe this will be helpful in further understanding.

Neuro-ophthalmology

Optic nerve

The optic nerve is the second of twelve paired cranial nerves and is technically part of the central nervous system


meower

meower Avatar

Location: i believe, i believe, it's silly, but I believe
Gender: Female


Posted: Oct 18, 2018 - 11:56am

 JrzyTmata wrote:


 meower wrote:
 

So. This is sort of unbelievable, except that it isn’t Bc it is happening. My girlfriend’s daughter has scoliosis. Rather than taking the traditional, surgical route, the family raised money for her to be able to take a chance on a new approach.

Please see the pics. The straighter spine is after three days of hard work. Three days.

https://www.treatingscoliosis.com/

 

 

Sorry about the cross post from the other site, but am Blown Away.

 

 
 
wow! that is amazing!

 
She's 14 and is doing a two week intensive, then has a home program for two years and then apparently, once she is done growing, her spine won't "fall" anymore.


JrzyTmata

JrzyTmata Avatar



Posted: Oct 18, 2018 - 11:53am



 meower wrote:
 

So. This is sort of unbelievable, except that it isn’t Bc it is happening. My girlfriend’s daughter has scoliosis. Rather than taking the traditional, surgical route, the family raised money for her to be able to take a chance on a new approach.

Please see the pics. The straighter spine is after three days of hard work. Three days.

https://www.treatingscoliosis.com/

 

 

Sorry about the cross post from the other site, but am Blown Away.

 

 


 
wow! that is amazing!

meower

meower Avatar

Location: i believe, i believe, it's silly, but I believe
Gender: Female


Posted: Oct 18, 2018 - 11:17am

 

So. This is sort of unbelievable, except that it isn’t Bc it is happening. My girlfriend’s daughter has scoliosis. Rather than taking the traditional, surgical route, the family raised money for her to be able to take a chance on a new approach.

Please see the pics. The straighter spine is after three days of hard work. Three days.

https://www.treatingscoliosis.com/

 

 

Sorry about the cross post from the other site, but am Blown Away.

 

 


katzendogs

katzendogs Avatar

Location: Pasadena ,Texas
Gender: Male


Posted: Mar 1, 2018 - 5:37pm

 Red_Dragon wrote:

P's pill is covered by a manufacturer's grant - thank the gods. I looked it up and ran the numbers; it's literally $500 per pill. Obscene.

 
I have /had one through co-pay relief. Two shots (one every 6 mos.). Changed Medicare plans so don't know yet how it's going to go for shot #2. Osteoporosis. I used to be 6-2 now 6ft. 

Bright side is i won't need to duck!{#Lol}
Red_Dragon

Red_Dragon Avatar



Posted: Mar 1, 2018 - 5:06pm

 Coaxial wrote:

I lucked out and get my one and only pill for 90 days for free...I had been paying 14.00 a month. Crazy that just by changing to a 90 day supply I found out about this deal. Just lets you know how much they are gouging elsewhere to make up for old cripples like me.

 
P's pill is covered by a manufacturer's grant - thank the gods. I looked it up and ran the numbers; it's literally $500 per pill. Obscene.
katzendogs

katzendogs Avatar

Location: Pasadena ,Texas
Gender: Male


Posted: Mar 1, 2018 - 5:01pm

 Coaxial wrote:

I lucked out and get my one and only pill for 90 days for free...I had been paying 14.00 a month. Crazy that just by changing to a 90 day supply I found out about this deal. Just lets you know how much they are gouging elsewhere to make up for old cripples like me.

 
{#Wave}

I just did this as well. (mail order) Gettin'n deep into my Medicare this year while I can get it! 3 of mine are now free for a 90 and one Tier 3 for a $10 savings.
 Hope all is well.
Coaxial

Coaxial Avatar

Location: 543 miles west of Paradis,1491 miles eas
Gender: Male


Posted: Feb 28, 2018 - 5:37am

 kurtster wrote:

'twas my intention.  On the HMO vs PPO thing ... HMO's certainly have their place, but as we get older and things are more likely to happen to us, especially if there are profound family histories of certain diseases, a switch to PPO's is in order, before you get ill, just in case.  That may not be an option depending on how you get your insurance, but if it is, do it.  The cost will be higher, but it puts you more in charge of picking who will serve your needs and when.  It may also give you a broader formulary to work with for your prescription drug needs.



 
I lucked out and get my one and only pill for 90 days for free...I had been paying 14.00 a month. Crazy that just by changing to a 90 day supply I found out about this deal. Just lets you know how much they are gouging elsewhere to make up for old cripples like me.
kurtster

kurtster Avatar

Location: drifting
Gender: Male


Posted: Feb 28, 2018 - 5:28am

 ScottFromWyoming wrote:
Excellent post (I think), Kurt. It's directed at one person but is informative for all. 
 
And A: Kick this thing!

 
'twas my intention.  On the HMO vs PPO thing ... HMO's certainly have their place, but as we get older and things are more likely to happen to us, especially if there are profound family histories of certain diseases, a switch to PPO's is in order, before you get ill, just in case.  That may not be an option depending on how you get your insurance, but if it is, do it.  The cost will be higher, but it puts you more in charge of picking who will serve your needs and when.  It may also give you a broader formulary to work with for your prescription drug needs.


Coaxial

Coaxial Avatar

Location: 543 miles west of Paradis,1491 miles eas
Gender: Male


Posted: Feb 28, 2018 - 5:08am

 ScottFromWyoming wrote:
Excellent post (I think), Kurt. It's directed at one person but is informative for all. 
 
And A: Kick this thing!

 
What Scott said.{#War}
ScottFromWyoming

ScottFromWyoming Avatar

Location: Powell
Gender: Male


Posted: Feb 27, 2018 - 10:43pm

Excellent post (I think), Kurt. It's directed at one person but is informative for all. 
 
And A: Kick this thing!
fractalv

fractalv Avatar

Location: Cornell, CA
Gender: Male


Posted: Feb 27, 2018 - 10:21pm

Thank you Kurtster. PM sent your way.
kurtster

kurtster Avatar

Location: drifting
Gender: Male


Posted: Feb 27, 2018 - 7:45pm


 fractalv wrote:

If the PSA test doesn't go to 0 after the surgery (which is rare but possible, and they had me sign a consent form to allow them to remove affected lymph nodes during the surgery if they thought it was necessary), there would be radiation treatments, I was told they don't have an effective chemo for this kind of cancer.

fractalv wrote:
Thank you so much, I am grateful for all the kind words, thoughts and prayers. And as far as I'm concerned, they worked! After I paid, signed all the consent forms, answered all the questions, got shaved in a place I've never shaved before, IV'd and EKG'd, pumped with a bunch of stuff including antibiotics and pain meds, answered more questions (most of them were the same over and over), they called off the surgery because they forgot to tell me (and it wasn't anywhere in the pile of torturous pre-op instructions that I followed to the T) to stop taking baby aspirin 7 days before the surgery.

Please doctors and nurses, don't assume everyone just knows this. I now know it, but I wasn't a regular in the medical procedure game (and really hope I never become one) and this is not something I would just know. Just as I don't assume my clients would know that the WiFi will work a lot better if the WiFI router is placed with a clear view of the things that demand the most of it. Kind of makes sense but many people just don't think about it and I don't assume they would. If it's going to be a deal breaker, one would think it would be in those instructions.

The cancer didn't go away, but I have time now to really appreciate having all of my organs, and I call that a win. Might be next January or February before we have to do this all over again.

  

What follows is in no way to be considered medical advice in any way shape or form.  I am legally not allowed to offer any advice.  It is only my opinion and should be verified by qualified medical persons before acting on any of this.  I offer this only as somethings to consider from one cancer survivor to another.  One becomes a cancer survivor as soon as you are diagnosed with cancer. 

The bolded above are two big red flags that are the primary reason for my reply.  This pre-op failure is so basic that it is unacceptable and reason enough to run away from this hospital or any hospital that fails this step.  Yes it is the most basic of all pre surgical instructions.  Stop taking any and all NSAIDs immediately for a period  appropriate prior to surgery.  NSAID's include Aspirin · ‎Naproxen · ‎Ibuprofen · ‎Diclofenac and some others.  They can prevent clotting of blood and cause uncontrolled bleeding during and after surgery.  Thank God someone caught this before.

And on the lymph node removal.  The lymphatic system as you may or may not know is the body's waste disposal or sewer system.  It is a chain of nodes and connectors throughout the body and it is imperative that this system not be broken up unless absolutely necessary.  Being a Lymphoma patient, which in general terms is a cancer of that system, I am familiar with it first hand.  Having said that, I only recently learned of the importance of keeping it intact.  My cancer / Non Hodgkin Lymphoma requires the taking of a complete lymph node in order to make a diagnosis.  It is the only way to confirm it.  I had no choice. 

We all have heard about cancer spreading to the lymph nodes (different from Lymphoma) prompting removal of those affected nodes to slow down the spread.  Well I have now learned otherwise in just the past month from my step daughter's new oncologist.  He is no lightweight, imho.  He was extremely unhappy with her treatment and especially the removal of some of nodes in the process of taking out some of her melanoma tumors.  He emphasized the importance of keeping the system intact and that it is very treatable with new immunological therapy coming online (as well with chemo if needed, as was in my case).  (this does not negate radiation therapy for the prostate, that would still be needed)  In other words, the prostate  and any affected lymph nodes should be dealt separately.  The prostate removed and the lymph nodes to be biopsied, but left in place for subsequent and appropriate treatment keeping the lymphatic system intact as much as possible.  The preceding is my conclusion based upon careful listening.  I may be wrong about this, but this is a question that should be raised in the course of your treatment.  That is why I consider it a flag.  Whoever is in charge and or doing the surgery is not up to date on the latest procedures, again, imo.

This eff up that has delayed your surgery may be a gift to proceed more carefully and cautiously, seeking out a second opinion as well as searching for a better hospital / venue for the surgery.   Based upon what you stated, everyone failed here.  Both the surgeon picked by your oncologist whose team should have informed you as well as the hospital's pre-op team.  They are separate from one another and both failed, imo.  That, to me is an unforgivable error and makes me wonder what else is being overlooked.  I would not give them another chance.

Any cancer diagnosis is life changing and causes emotions to take you over, initially.  You are in shock and for good reason.  It can and will kill you if left untreated.  Emotion must be controlled and cool, calm thinking must dictate your course of action.  Ideally, you take all emotion out of it and treat it like a business venture.  Easier said than done, but been there done that.

Fortunately, prostate cancer is common, well understood and generally progresses slowly.  I do not know what stage you are and that is a consideration, always.  But time would be on your side unless you are at an advanced stage.  While common, there is no routine treatment or surgery of any cancer.  It is all unique to the individual.  Since you are looking at next year, you will go through a policy renewal and you now have a pre-existing condition.  Now that you have cancer, you need a PPO plan if you do not have one already.  If you have an HMO, you must change it to a PPO plan, ASAP.  HMO's are ok for colds and broken bones until you get sick, really sick.  You need to be able to seek out your own specialists without needing permission, where ever you can find them.  An HMO will restrict your choices to what they consider best for you regardless of how you feel about it.  You don't have any say so in the matter.  You take whoever they assign you.  I would recommend that you seek out a hematologist / oncologist.  You should have had a PET scan as well as a CT scan prior to surgery just to see what lights up prior to surgery, notably and especially lymph nodes as well as vital organs and your bone marrow.  Hematologist / oncologists are the best suited for dealing with diagnosing and directing cancer treatments, imo and would find the surgeon most suited for your needs.  They almost never perform surgery, they know who does and does it well.  They will be best suited for dealing with the lymphatic system should there be cause and more than likely most current on recent developments in treatment.  You now have time to do some searching for quality care and plan ahead.  You have more time to ask questions and get answers.

Pardon me if I overstepped. The preceding was not meant in any way to cast any aspersions on you or your decision making in your journey through cancer.  If your surgery had gone as scheduled, I would have nothing to say other than wish you a speedy recovery.  But you raised two glaring red flags that compelled me to write the above, now that you have the need to alter your course of action. 

I only know what I know.  I defer to others here who have more knowledge and experience for criticism and corrections of what I offered above and will not take any offense of either.  Anecdotal exchanges of knowledge does have a place in dealing with cancer.  I am reminded of a woman I met during my stem cell transplant who lived just an hour away from the Cleveland Clinic, as do I, who was told by her doctor where she lived that there was nothing more that could be done for her.  It was time to get her affairs in order.  Bullshit.  Never settle.  There is no such thing as routine cancer / treatment.

Wishing you all the best, k


meower

meower Avatar

Location: i believe, i believe, it's silly, but I believe
Gender: Female


Posted: May 3, 2017 - 10:45am

Hoopla, here anyway. The thing that you sign when you say that you know your rights under HIPPA here says that you agree that your insurance company can talk to your doc/review your records

 


JrzyTmata

JrzyTmata Avatar



Posted: May 3, 2017 - 10:45am

 Red_Dragon wrote:
Is this for real, or just interweb hoohaa?

 

 
SNOPES says mixed truth/false
Red_Dragon

Red_Dragon Avatar



Posted: May 3, 2017 - 10:35am

Is this for real, or just interweb hoohaa?

 
kurtster

kurtster Avatar

Location: drifting
Gender: Male


Posted: Mar 11, 2017 - 1:48pm

 triskele wrote:
*long post*

 
Hoping you get relief.  I have sort of the opposite situation.  I get testosterone shots every other week.  Next month is the 8th anniversary of my transplant, which wiped out any ability to produce testosterone naturally.  IIRC, its been 6 years of these shots which have wrecked havoc on my soft tissues as well.  I used to have the shots alternated between shoulders, but after about 3 or so years I suddenly got what we all thought was tennis elbow.  We eliminated that as a possibility and concluded it was the shots.  Since then I now have them from left to right shoulder and then left hip to right hip and that's the pattern.  The tennis elbow stopped went away after a few months and life was good again.  Now in the past couple of years, I'm getting these pains and cramps in my ribs and legs.  The ribs hurt like when you hold your jaw open too long and happen when I twist in a funny way.  The leg cramps are getting so bad that I will wake up screaming in the middle of the night and getting up and standing does not do a damn thing and it lasts for a half an hour now.  I have tried boosting my potassium intake and that seems to give me some relief.  Its still not resolved and the bouts are more frequent.

Its the long term stuff you have to deal with afterwards.  When you're told your terminal, you don't worry about what's left of you until you get there, if you get there.  Pain sucks, period.  But you're doing for you what you have to do by talking to the various people about the different meds you're dealing with and informing and questioning the others.  Surviving this stuff after the primary treatments is not a passive event, ever.   I'm pulling for you.

{#Cheers}  {#Hug}


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