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Project 2025 - islander - Jul 17, 2024 - 6:20pm
 
Things You Thought Today - R_P - Jul 17, 2024 - 6:05pm
 
• • • The Once-a-Day • • •  - oldviolin - Jul 17, 2024 - 6:03pm
 
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Best Song Comments. - q4Fry - Jul 17, 2024 - 7:32am
 
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Musky Mythology - Red_Dragon - Jul 17, 2024 - 5:47am
 
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What questions would you like to answer for the world? - oldviolin - Jul 16, 2024 - 5:43pm
 
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Gimmie 5 Kurt! - thisbody - Jul 16, 2024 - 12:30pm
 
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2024 Elections! - R_P - Jul 15, 2024 - 8:43pm
 
Favorite Quotes - Isabeau - Jul 15, 2024 - 3:43pm
 
Words that should be put on the substitutes bench for a year - Isabeau - Jul 15, 2024 - 12:25pm
 
The Truth About (Modern) Popular Music - Proclivities - Jul 15, 2024 - 8:18am
 
Please don't ban me, but: Taylor Swift... - sunybuny - Jul 15, 2024 - 4:55am
 
YouTube: Music-Videos - Beaker - Jul 14, 2024 - 3:51pm
 
Pernicious Pious Proclivities Particularized Prodigiously - R_P - Jul 14, 2024 - 12:52pm
 
Media Bias - Beaker - Jul 14, 2024 - 9:46am
 
what the hell, miamizsun? - oldviolin - Jul 14, 2024 - 7:51am
 
The Obituary Page - DaveInSaoMiguel - Jul 14, 2024 - 6:42am
 
AH! There's an elephant in the room! - Red_Dragon - Jul 13, 2024 - 3:42pm
 
Outstanding Covers - DaveInSaoMiguel - Jul 13, 2024 - 12:49pm
 
Evolution! - R_P - Jul 13, 2024 - 10:34am
 
Eclectic Sound-Drops - oldviolin - Jul 13, 2024 - 10:23am
 
Europe - thisbody - Jul 12, 2024 - 11:35pm
 
Vinyl Only Spin List - kurtster - Jul 12, 2024 - 9:59pm
 
RP on Mac Just Stopped Working - tourtelot - Jul 12, 2024 - 9:35pm
 
Are they married yet? YES THEY ARE! - Manbird - Jul 12, 2024 - 2:51pm
 
Tech & Science - Manbird - Jul 12, 2024 - 2:46pm
 
Classic TV Curiosities - Proclivities - Jul 12, 2024 - 12:50pm
 
Ukraine - R_P - Jul 12, 2024 - 10:48am
 
Florida - miamizsun - Jul 12, 2024 - 7:05am
 
Regarding Birds - Jiggz - Jul 12, 2024 - 1:41am
 
Strange signs, marquees, billboards, etc. - thisbody - Jul 11, 2024 - 10:36pm
 
Gotta Get Your Drink On - Antigone - Jul 11, 2024 - 2:36pm
 
Photography Forum - Your Own Photos - KurtfromLaQuinta - Jul 11, 2024 - 2:05pm
 
Record Store Day - Proclivities - Jul 11, 2024 - 8:18am
 
What makes you smile? - Steely_D - Jul 11, 2024 - 5:12am
 
Derplahoma! - sunybuny - Jul 11, 2024 - 4:39am
 
Russia - thisbody - Jul 11, 2024 - 3:11am
 
France - thisbody - Jul 11, 2024 - 3:04am
 
Britain - thisbody - Jul 10, 2024 - 11:36pm
 
Good Idea / Bad Idea - ScottFromWyoming - Jul 10, 2024 - 4:39pm
 
How's the weather? - KurtfromLaQuinta - Jul 10, 2024 - 4:35pm
 
RP Daily Trivia Challenge - ScottFromWyoming - Jul 10, 2024 - 2:56pm
 
SCOTUS - Red_Dragon - Jul 10, 2024 - 2:20pm
 
Twitter and democracy - R_P - Jul 10, 2024 - 8:40am
 
Index » Radio Paradise/General » General Discussion » Other Medical Stuff Page: Previous  1, 2, 3, ... 52, 53, 54  Next
Post to this Topic
DaveInSaoMiguel

DaveInSaoMiguel Avatar

Location: No longer in a hovel in effluent Damnville, VA
Gender: Male


Posted: May 15, 2024 - 3:33pm

In the last few months I've developed an odd symptom - full body itch while exercising. Goes away after cool down. Found its totally skin temp related. I can take a shower and slowly up the water temp and at a certain temp the itch starts and lowering the temp it goes away.  Got tested for all sorts of allergies and CBC and liver panels etc all are pretty normal. Anti-histamines had no effect. Skin cremes had no effect.
So then I got tested for various tumor markers. Turns  out CEA is elevated but CEA 19.9 is normal. I had lung cancer and surgery in 2006 so got Chromagramin A tumor marker test and it was normal. Had a colonoscopy just a few months ago and that was normal.
So next week I get to see 2 Docs and likely much more testing to determine just cancer I've been lucky enough to get this time. CEA is not specific to any one type of cancer so could be one of several choices. What fun.
kurtster

kurtster Avatar

Location: where fear is not a virtue
Gender: Male


Posted: May 6, 2024 - 1:04pm

 kurtster wrote:
Oh, boy.  So I'm learning really fast about low IgG.

We just got a denial of payment from my insurance company for the one treatment I just had.  The cost of a single treatment is $10k as I have come to find out.  I had heard the 10k part but didn't know if was a per dose or per year.  Didn't want to look.  The company says that there are alternative self administered or over the counter options and want to shove it onto Medicare Part D.  One treatment will immediately put me in the donut hole.

So I'll be taking it to my Onc this Wednesday to work on the appeal process and also find out what real options there are.

Seems that this is a common treatment for CIDP which all of a sudden is an autoimmune disease all over the place in TV commercials for a new med.  It is also a treatment for Myasthenia Gravis (also an autoimmune) which one of my closest friends was recently diagnosed with.  My problem is from cancer and the treatment which destroyed my immune system.

This is not a drill.  Practice is over.  This is for all the marbles. Time to get busy and ask questions.  
.

{#War}
 
Update: The Clinic has the original approval letter and said that they would not have provided me the infusion without it. Future rounds are allowed (so far). I am keeping the next appointment for the next dose which will be May 15.  So I'll find out when I show up.

I've also read about all kinds of side affects especially vascular and wouldn't ya know it, my every 6 month visit with my new cardiologist is this Wednesday so I'll pick his brains about this stuff and the side affects he knows.  Serendipity do dah ...

Never a dull moment.
kurtster

kurtster Avatar

Location: where fear is not a virtue
Gender: Male


Posted: May 4, 2024 - 10:24am

Oh, boy.  So I'm learning really fast about low IgG.

We just got a denial of payment from my insurance company for the one treatment I just had.  The cost of a single treatment is $10k as I have come to find out.  I had heard the 10k part but didn't know if was a per dose or per year.  Didn't want to look.  The company says that there are alternative self administered or over the counter options and want to shove it onto Medicare Part D.  One treatment will immediately put me in the donut hole.

So I'll be taking it to my Onc this Wednesday to work on the appeal process and also find out what real options there are.

Seems that this is a common treatment for CIDP which all of a sudden is an autoimmune disease all over the place in TV commercials for a new med.  It is also a treatment for Myasthenia Gravis (also an autoimmune) which one of my closest friends was recently diagnosed with.  My problem is from cancer and the treatment which destroyed my immune system.

This is not a drill.  Practice is over.  This is for all the marbles. Time to get busy and ask questions.  
.

{#War}
miamizsun

miamizsun Avatar

Location: (3283.1 Miles SE of RP)
Gender: Male


Posted: May 2, 2024 - 4:37pm

 kurtster wrote:

Just heard an interview on the radio with a local MD / Prof medical tech at CWRU.  He is working on a DARPA project to create artificial blood.  It started in 2020 and now in 2024 with the progress made is expected to be in clinicals within 4 to 5 years.  He is working on the platelets part.  The red cells are well under way.  Didn't here anything about the white cells.

The end product would be powdered.  Just add sterile water or saline and poof !  Originally for battle injuries, but also for civilian uses in ambulances and onboard on choppers.  He went into the risks and what the body does to try and deal with extreme blood loss which among other things makes a very acidic fluid in order to try and clot.

I'll post more if I can find it.  Writing this down before I forget the details.

Cheers !



that would be great
i think researchers in japan may have done something similar

kurtster

kurtster Avatar

Location: where fear is not a virtue
Gender: Male


Posted: May 2, 2024 - 1:09pm

Just heard an interview on the radio with a local MD / Prof medical tech at CWRU.  He is working on a DARPA project to create artificial blood.  It started in 2020 and now in 2024 with the progress made is expected to be in clinicals within 4 to 5 years.  He is working on the platelets part.  The red cells are well under way.  Didn't here anything about the white cells.

The end product would be powdered.  Just add sterile water or saline and poof !  Originally for battle injuries, but also for civilian uses in ambulances and onboard on choppers.  He went into the risks and what the body does to try and deal with extreme blood loss which among other things makes a very acidic fluid in order to try and clot.

I'll post more if I can find it.  Writing this down before I forget the details.

Cheers !
geoff_morphini

geoff_morphini Avatar

Gender: Male


Posted: Apr 13, 2024 - 7:54am

 Isabeau wrote:

Today, my 86 yr old Mum asked to stop her treatment today. A month in an army hospital, with daily aggressive needles, centisis and tubes; she held up the white flag and asked for palliative care. It's been a month in one of the top military hospitals in the Nation and she's one step forward - two back. Poor gal is tired. She let me know what she wanted. We got to say what all of us want the chance to say. Mortality and the preciousness of LIFE BORN - not imagined - is intense right now. 
RP is another great medicine for that. 
And so is this crazy community of phenomenal music lovers.


I’m very sorry  Isabeau. It’s good she can make the decision herself. 
Steely_D

Steely_D Avatar

Location: Biscayne Bay
Gender: Male


Posted: Apr 13, 2024 - 6:44am

 kurtster wrote:
.  
{#War}




kurtster

kurtster Avatar

Location: where fear is not a virtue
Gender: Male


Posted: Apr 13, 2024 - 4:46am

Thanks.

Went well.  Uneventful, yay ! 

Froze my ass off sitting in that chair for 4 hours though.  The only downside.  Couldn't dress warm enough having to wear short sleeves and the blankets only do so much.  Came home and crawled in bed for about 7 hours to warm up.

Have no idea how I'm supposed to feel afterwards and how long it takes to actually benefit from this but I do feel pretty good this morning which means that I can work the day after which was another concern.

Onwards and the fight renews itself.  {#War}
BlueHeronDruid

BlueHeronDruid Avatar

Location: Заебани сме луѓе


Posted: Apr 12, 2024 - 11:20pm

 kurtster wrote:

Off to see the lizard shortly for my first IgG infusion.  Been doing curls trying to build up my veins in my spare arm in order to hopefully avoid a vein blowout and infiltration. 

Been taking Advil the past week to thin my blood to make it easier to receive hopefully.  Hopefully its a gravity bag without using a pump. 
 
Almost 15 years to the day when I went in to start my transplant.

Never a dull moment anymore.  Sigh ...




Best of luck!
miamizsun

miamizsun Avatar

Location: (3283.1 Miles SE of RP)
Gender: Male


Posted: Apr 12, 2024 - 4:49am

 kurtster wrote:

Off to see the lizard shortly for my first IgG infusion.  Been doing curls trying to build up my veins in my spare arm in order to hopefully avoid a vein blowout and infiltration. 

Been taking Advil the past week to thin my blood to make it easier to receive hopefully.  Hopefully its a gravity bag without using a pump. 
 
Almost 15 years to the day when I went in to start my transplant.

Never a dull moment anymore.  Sigh ...





kurtster

kurtster Avatar

Location: where fear is not a virtue
Gender: Male


Posted: Apr 12, 2024 - 4:03am

Off to see the lizard shortly for my first IgG infusion.  Been doing curls trying to build up my veins in my spare arm in order to hopefully avoid a vein blowout and infiltration. 

Been taking Advil the past week to thin my blood to make it easier to receive hopefully.  Hopefully its a gravity bag without using a pump. 
 
Almost 15 years to the day when I went in to start my transplant.

Never a dull moment anymore.  Sigh ...
haresfur

haresfur Avatar

Location: The Golden Triangle
Gender: Male


Posted: Apr 7, 2024 - 4:58pm

 KurtfromLaQuinta wrote:










KurtfromLaQuinta

KurtfromLaQuinta Avatar

Location: Really deep in the heart of South California
Gender: Male


Posted: Apr 7, 2024 - 4:51pm

 Antigone wrote:



 I think it's safe to say it's NOT COPD which is very good. And there is actually a clinical name for (as a long ago ex described it) "how can all that snot come out of that little nose"?  
Vasomotor Rhinitis.










KurtfromLaQuinta

KurtfromLaQuinta Avatar

Location: Really deep in the heart of South California
Gender: Male


Posted: Apr 7, 2024 - 4:48pm

 NoEnzLefttoSplit wrote:


politics isn't everything.

Indeed.

But Mopars are. 


kurtster

kurtster Avatar

Location: where fear is not a virtue
Gender: Male


Posted: Apr 7, 2024 - 2:22pm

 Isabeau wrote:
Today, my 86 yr old Mum asked to stop her treatment today. A month in an army hospital, with daily aggressive needles, centisis and tubes; she held up the white flag and asked for palliative care. It's been a month in one of the top military hospitals in the Nation and she's one step forward - two back. Poor gal is tired. She let me know what she wanted.

We got to say what all of us want the chance to say.


Mortality and the preciousness of LIFE BORN - not imagined - is intense right now. 
RP is another great medicine for that. 
And so is this crazy community of phenomenal music lovers.
 
A priceless gift.

.
{#Hug}  {#Meditate}
haresfur

haresfur Avatar

Location: The Golden Triangle
Gender: Male


Posted: Apr 7, 2024 - 1:58pm

 Isabeau wrote:

Today, my 86 yr old Mum asked to stop her treatment today. A month in an army hospital, with daily aggressive needles, centisis and tubes; she held up the white flag and asked for palliative care. It's been a month in one of the top military hospitals in the Nation and she's one step forward - two back. Poor gal is tired. She let me know what she wanted. We got to say what all of us want the chance to say. Mortality and the preciousness of LIFE BORN - not imagined - is intense right now. 
RP is another great medicine for that. 
And so is this crazy community of phenomenal music lovers.



So sorry, Isabeau
Isabeau

Isabeau Avatar

Location: sou' tex
Gender: Female


Posted: Apr 7, 2024 - 1:12pm

Today, my 86 yr old Mum asked to stop her treatment today. A month in an army hospital, with daily aggressive needles, centisis and tubes; she held up the white flag and asked for palliative care. It's been a month in one of the top military hospitals in the Nation and she's one step forward - two back. Poor gal is tired. She let me know what she wanted. We got to say what all of us want the chance to say. Mortality and the preciousness of LIFE BORN - not imagined - is intense right now. 
RP is another great medicine for that. 
And so is this crazy community of phenomenal music lovers.

Isabeau

Isabeau Avatar

Location: sou' tex
Gender: Female


Posted: Apr 7, 2024 - 1:06pm

 Coaxial wrote:

He has led an amazing life and I wish him many more enjoyable years.
{#Cheers}

Certainly a part of my parent's and my tween history. Nobody like him. Did you know he is a prolific MUSICAL composer as well? The man can play piano and often submits background melodies for films, lauded by many for his talent. Amazing we aren't aware of that side of his talent.

miamizsun

miamizsun Avatar

Location: (3283.1 Miles SE of RP)
Gender: Male


Posted: Apr 5, 2024 - 10:29am

excellent news and this is a big deal
i think the vast majority of the transplant waiting list need a kidney



Antigone

Antigone Avatar

Location: A house, in a Virginian Valley
Gender: Female


Posted: Mar 22, 2024 - 3:06pm

 Steely_D wrote:


Best two out of three?



 I think it's safe to say it's NOT COPD which is very good. And there is actually a clinical name for (as a long ago ex described it) "how can all that snot come out of that little nose"?  
Vasomotor Rhinitis.




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